Heat: Our air conditioner is broken. It needs to be completely replaced. We are scheduled for that a week from Friday. It is only 8AM and it is 75 degrees with 77% humidity inside. It is only going to go up from there, with outside temps predicted to reach 90. I've closed up the house to try to keep it from getting too terrible as the day goes on. It's odd to have sticky floors though...
Heartache: Julie had a very hard night. She woke up crying four times between 11:45 and 4:25, at which point Larry switched beds with her and I tried to help her sleep through the morning. The heartache involved is twofold. First, she was inconsolable. One of the worst, most helpless feelings for me as a parent is being unable to help or comfort one of my children. Second, she was totally unable to tell us what was wrong, even in basic terms. There are many challenges to raising a child with developmental challenges, but this is one of the hardest. We are left guessing and grasping at straws much of the time. One day I hope she can say "I'm scared" or "My tummy hurts" or anything that would give us a clue about what is going on inside her at any given time. She also doesn't yet understand many questions put to her, like "what's wrong?" or "why are you crying?" She has definitely made a ton of progress in the right direction, but sometimes it feels like communication fails us most when it is most needed. So, we forge on, doing everything we know how to do for her, praying that it is enough.
Let me end on an up note. Today, for the second time this week, Julie woke up with a dry diaper!! We are so proud of her! It's hard to believe she'll be 4 in just a few weeks. Wow.
Thursday, June 05, 2008
Heat and Heartache
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What you're talking about made me think about Jenny McCarthy and Jim Carrey. Granted, Jenny McCarthy would not be my idea of a role model for a parent, but this week they've been in the news because her son has autism and she's convinced it was caused by too many vaccines. They are lobbying in DC to try and reduce the schedule of vaccines so kids are getting so many or getting too many at once. The part that applies to you, is she is also convinced that her son's autism is "treatable" (to some extent) by his diet. They've removed most dairy and wheat from his diet and they swear they can see a difference in his language and functioning. They actually said if they give him something w/ wheat in it, they can actually watch is his language go out the window as he eats it and gets the wheat in his system. I just thought I'd pass that along in case you wanted to look them up and see what they have to say. Especially w/ Julie being so young, I would think if autism is cureable or treatable, this is the most opportune time while she is young and more able to heal herself than when she gets older. Just a thought. Hope it helps and hope I didn't step over the line or anything. Good luck good mama!
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